article thumbnail

Addressing the Diversity Challenge in Clinical Research Through Patient Advocacy

HIT Consultant

Andrew Barnhill, Head of Public Policy, Global Legal, IQVIA Alexandra Weiss, Director of Strategic Partnerships, Patient Advocacy Organizations, IQVIA Diversity is paramount to the success of clinical research, both ethically and scientifically.

article thumbnail

Hospitals are hiding prices from patients, advocacy report says

Healthcare Dive

Patient Rights Advocate concluded that some hospitals owned by Ascension and HCA Healthcare are omitting rates for medical services from files made public under new federal rules.

Insiders

Sign Up for our Newsletter

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.

article thumbnail

Creating A Thriving Patient-Centric Data Economy

HIT Consultant

Patient data will be a sustainable resource that continually generates patient-benefitting research insights. Patient advocacy and non-profit health organizations will be the “credit unions” — responsible fiduciaries who connect patients, researchers, hospitals and other institutions.

article thumbnail

Hearing Patients and Their Caregivers First Hand at the RARE Patient Advocacy Summit

Healthcare IT Today

Kind of on a whim I decided to head to San Diego (a great place for whimsical travel) for the RARE Patient Advocacy Summit by Global Genes. To be fair, Effie Parks from Once Upon a Gene Podcast had told me about it before and I’d been on the fence on whether I should go or not.

article thumbnail

Why Clinical Data Research Needs a Makeover in 2023

HIT Consultant

That conversation got me thinking: what if patient advocacy groups had the same “strength in numbers” philosophy when it came to clinical data? Patient advocacy groups and researchers can view themselves as a collective, giving them influence as they seek access to datasets. What if they could take collective action too?

article thumbnail

Finding Balance in Patient-Centric RCM

Healthcare IT Today

Instead of being seen as just a series of numbers, financial statements, and outcomes, a successful revenue cycle should encompass the entire patient journey – which should continue to be the central focus and the heart of healthcare.

article thumbnail

Rare Genomics Institute Brings Hope To Rare Disease Patients

Electronic Health Reporter

By Romina Ortiz, COO and vice president of patient advocacy, Rare Genomics Institute. This article is copyrighted strictly for Electronic Health Reporter. Illegal copying is prohibited. Getting a diagnosis for a rare disease is a long and often painful journey that can take an average of five years1 and hundreds of doctor visits.