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Hospitals are hiding prices from patients, advocacy report says

Healthcare Dive

Patient Rights Advocate concluded that some hospitals owned by Ascension and HCA Healthcare are omitting rates for medical services from files made public under new federal rules

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Addressing the Diversity Challenge in Clinical Research Through Patient Advocacy

HIT Consultant

Andrew Barnhill, Head of Public Policy, Global Legal, IQVIA Alexandra Weiss, Director of Strategic Partnerships, Patient Advocacy Organizations, IQVIA Diversity is paramount to the success of clinical research, both ethically and scientifically.

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Hearing Patients and Their Caregivers First Hand at the RARE Patient Advocacy Summit

Healthcare IT Today

Kind of on a whim I decided to head to San Diego (a great place for whimsical travel) for the RARE Patient Advocacy Summit by Global Genes. If sharing would help more patients, then sharing was worth it. Helping patients wasn’t just a means to an end.

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Drug-free sinus pain relief, acne app, patient advocacy aggregator, and more debut at Health 2.0's 'Launch!'

Mobi Health News

OMNY Health, which helps hospitals monetize operational data, took home the audience choice grand prize

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Interview with Unblock Health Co-Founder, Grace Cordovano

Healthcare IT Today

When I saw the announcement of Unblock Health by my friends and colleagues, Dr. Grace Cordovano, BCPA, and Shahid Shah, I knew I had to learn more and help them in their efforts to Unblock Health for patients everywhere.

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Five VALUE Offerings of the Ideal Health Management Company

The Digital Health Corner

A technology is a tool which only becomes a solution when it is placed in a context of healthcare needs, provider, patient and caregiver workflows, and incorporates human interactions which close the loop on significant outlying data. I will discuss five areas which I believe are going to make a difference in patient reported outcomes. In fact more than half of all patient interactions at Kaiser Permanente are virtual ones via smartphone, kiosk, or computer.

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Healthcare Consolidation: Opportunities for Digital Health Technology

The Digital Health Corner

Electronic health records purchase, maintenance, and associated technologies (analytics, digital imaging, patient monitoring, etc) are now necessary big-ticket items in healthcare. In addition, the current use of electronic portals by patients to view their medical record is abysmal. A survey by athenahealth reveals that although 87% of patients want electronic access to their medical records only 29% actually use portals. Patients are affected directly and indirectly.

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Five Ways Digital Technologies can Address Cancer

The Digital Health Corner

The traditional collection of information on cancer has been with the collection of limited data derived from patient demographics, health history and episodic office encounters. There are now digital technologies now which incorporate raw data from pathology, genomics, imaging studies, patient reported symptoms and follow-up and more. The convergence of social media and healthcare was both inevitable and beneficial for patients.

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Digital Health Technologies for Alzheimer’s Disease

The Digital Health Corner

The ability of digital tools to detect early diagnosis of Ad is important in medical and social planning for the patient and family. Digital assessment tools like these can also save clinician time and offer a better objective patient assessment. It is worthy of noting that patients with larger baseline ‘cognitive reserve’ do better to a point then characteristically have a rapidly progressive course. The statistics related to Alzheimer’s disease (Ad) are astonishing.

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Rare Genomics Institute Brings Hope To Rare Disease Patients

Electronic Health Reporter

By Romina Ortiz, COO and vice president of patient advocacy, Rare Genomics Institute. The article Rare Genomics Institute Brings Hope To Rare Disease Patients appeared first on electronichealthreporter.com. This article is copyrighted strictly for Electronic Health Reporter. Illegal copying is prohibited. Getting a diagnosis for a rare disease is a long and often painful journey that can take an average of five years1 and hundreds of doctor visits.

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Why Clinical Data Research Needs a Makeover in 2023

HIT Consultant

Hospitals, biobanks and other institutions have been entrusted with patient data. As a result of that stewardship, patient privacy is always top of mind when they weigh the delicate balance of data sharing for innovation and protecting data.

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The Evolution of a Patient Ambassador – Learning from Stacy Hurt

Health Populi

“I am a health care executive who happens to be a patient, caregiver, and advocate,” Stacy Hurt explained to me in a Zoom chat we shared on 31 May. I asked her to meet with me to discuss her professional news update: being appointed Parexel’s first Patient Ambassador.

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ATA hosts series this week on the value of virtual care

Healthcare IT News - Telehealth

ATA is taking the week to encourage telehealth solution providers, hospital systems and medical practices, patient advocacy leaders, policymakers and other stakeholders to examine hybrid care models that include in-person and virtual care.

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Patients Look Beyond the Pandemic to Pharma for Engagement, Innovation, and Integrity

Health Populi

The COVID-19 pandemic has impacted patients who were already deeply engaged with their own health care before the coronavirus emerged. PatientView, based in the UK, has collaborated with over 40,000 patient advocacy organizations globally marking over 10 years doing this research.

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Another Legislative Attempt to Revive Gene Patenting

Bill of Health

Representing a coalition of medical and scientific associations, researchers, genetic counselors and patients, the ACLU and PubPat argued instead that human genes are “products of nature” that should not be patentable. In its unanimous 2013 decision in Association for Molecular Pathology v.

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A Look at the Fall Health IT Conference Season

Healthcare IT Today

RARE Disease Patient Advocacy Summit. As most regular readers know, at Healthcare IT Today we go to far too many healthcare IT conferences. Plus, the fall conference season is the busiest time of year for health IT conferences.

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Cultivating an Early Warning System in Healthcare Quality Through Bi-Directional Patient-Physician Engagement 

HIT Consultant

Patient advocacy organizations and medical specialty societies can serve as a liaison between patients and providers in bi-directional engagement, closing gaps in the patient journey and ultimately driving innovation for higher quality care. David Voccola, Sr.

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Vital Start Health Launches Virtual Reality-Enabled Telemedicine Platform for Maternal Mental Health

HIT Consultant

– The platform empowers patients with experiential practice and immersive psychoeducation, with the goal of driving better diagnoses, and targeted treatment, leading to greater effectiveness and outcomes.

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Hands-on cardiac education pays dividends for patients and others, says Abiomed

Healthcare It News

Connecting patients with each other, and with technologists Beyond pictures, videos and surgical explanations, many cardiology intervention patients want to know more about the technology that enabled their heart recovery.

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California pharmacies will no longer be required to pay back the state under its new reimbursement methodology

Natalia Mazina

Several pharmacists and patient advocacy groups filed legal actions against the DHCS and worked with legislature to eliminate these chargebacks to pharmacies.

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Can a Food-As-Medicine App Extend Chronic Health Management at the Grocery Store?

Health Populi

Foogal, a recipe app designed to support patients’ healthy cooking and eating, launched on 24th March. In its initial version, Foogal addresses several specific diet paradigms: for patients demanding a wellness protocol, an autoimmune protocol, or wanting to address insulin resistance.

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The Economics of the Pandemic Put Costs at the Top of Americans’ Health Reform Priorities

Health Populi

In 2021, patients-as-health-consumers seek lower health care and prescription drug costs coupled with higher quality care, discovered by the patient advocacy coalition, Consumers for Quality Care.

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CVS Caremark Expands Efforts to Tackle Health Disparities

HIT Consultant

What You Should Know: – CVS Caremark announced an expansion of its efforts to address health disparities among patients, starting with certain conditions including sickle cell disease, HIV, and cardiovascular disease.

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AllStripes Secures $50M to Advance Global Rare Disease Research Platform

HIT Consultant

AllStripes is currently partnering with more than 30 patient advocacy organizations across its 40 conditions, supporting more than 3,000 users to date. Nancy Yu, CEO and Co-founder, AllStripes.

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A Look at 3 Entrepreneurial Efforts in the Rare Disease Space

Healthcare IT Today

I previously shared about the amazing time I had listening to patients and caregivers at the RARE Patient Advocacy Summit that is hosted by Global Genes. Plus, all three applications are free for rare disease patients.

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How the Life Sciences Industry Can Boost Diversity and Inclusion Efforts

HIT Consultant

Along this entire path, the organization must ensure that diverse voices are included and the needs of diverse patient populations are taken into account. – Ask themselves, “Is there an underserved patient population that we need to consider here?”.

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Weekly Roundup – October 22, 2022

Healthcare IT Today

Colin Hung recently chatted with Sightsavers’ Andy Tate to discuss the benefits of GIS to control and eliminate trachoma , an infectious cause of blindness easily treated with antibiotics – provided they get in patients’ hands. Clinical and administrative staff used to be afraid of process automation, but over time healthcare has learned to embrace automation as a way to augment staff or meet patients’ needs. Welcome to our Healthcare IT Today Weekly Roundup.

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The Economics of the Pandemic Put Costs at the Top of Americans’ Health Reform Priorities

Health Populi

In 2021, patients-as-health-consumers seek lower health care and prescription drug costs coupled with higher quality care, discovered by the patient advocacy coalition, Consumers for Quality Care.

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Weekly Roundup – September 17, 2022

Healthcare IT Today

Andy Oram talked to Imprivata CEO Gus Malezis about the role of patient data harmonization and AI-powered analytics in helping Amazon capitalize on its One Medical buy – and why it will take at least five years for Amazon to put it all together.

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Even When IVF Is Covered by Insurance, High Bills and Hassles Abound

Kaiser Health News

And, as is true for the majority of the procedures nationally (success rates vary from 12% to 49% depending on a patient’s age), neither round resulted in a viable pregnancy.

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What’s Causing Fewer Primary Care Visits in the US?

Health Populi

This bar chart comes from that study, which found a decline in primary are rates — but for those patients who had visits, those were longer and addressed ore issues per visit.

ACA 144
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Wasted: $1 of Every $4 Spent on Health Care In America

Health Populi

patients). On the demand side — as the patient is becoming a growing force as Payor — will patients-as-consumer-payors articulate their demand to exorcise wasted spending, taking on their mantle as Health Citizens? On the consumer and patient side, the AARP, patient advocacy groups, and increasingly visible and assertive patient social networks are more in the mix on Capitol Hill than they were a decade ago.

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Our Nursing Home Industry – A National Scandal

HIT Consultant

It has led me to found Tapestry Health, a multispecialty medical practice that focuses on providing medical infrastructure in skilled nursing facilities (SNFs), as well as Project Patient Care, a patient advocacy organization based in Chicago, Illinois.

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Weekly Roundup – September 17, 2022

Healthcare IT Today

Andy Oram talked to Imprivata CEO Gus Malezis about the role of patient data harmonization and AI-powered analytics in helping Amazon capitalize on its One Medical buy – and why it will take at least five years for Amazon to put it all together.

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Fighting Front-End Staff Burnout Without Compromising Care

HIT Consultant

Research tells us that self-advocacy in healthcare is important, for both patients and providers. But self-advocacy is hard for patients today. Patients must navigate the complex, fragmented healthcare ecosystem to advocate for personal needs and have their voices heard.