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Hospitals are hiding prices from patients, advocacy report says

Healthcare Dive

Patient Rights Advocate concluded that some hospitals owned by Ascension and HCA Healthcare are omitting rates for medical services from files made public under new federal rules.

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Educating patients to advocate for themselves and for policy change

Healthcare It News

Gözde Susuzlu Briggs, programme manager for the European Patients' Forum, discusses the "Data Saves Lives" initiative, which explains digital data and AI concepts to patients and encourages involvement in patient advocacy organizations.

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Addressing the Diversity Challenge in Clinical Research Through Patient Advocacy

HIT Consultant

Andrew Barnhill, Head of Public Policy, Global Legal, IQVIA Alexandra Weiss, Director of Strategic Partnerships, Patient Advocacy Organizations, IQVIA Diversity is paramount to the success of clinical research, both ethically and scientifically.

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Hearing Patients and Their Caregivers First Hand at the RARE Patient Advocacy Summit

Healthcare IT Today

Kind of on a whim I decided to head to San Diego (a great place for whimsical travel) for the RARE Patient Advocacy Summit by Global Genes. To be fair, Effie Parks from Once Upon a Gene Podcast had told me about it before and I’d been on the fence on whether I should go or not.

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ATA hosts series this week on the value of virtual care

Healthcare It News

ATA is taking the week to encourage telehealth solution providers, hospital systems and medical practices, patient advocacy leaders, policymakers and other stakeholders to examine hybrid care models that include in-person and virtual care. WHY IT MATTERS.

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Rare Genomics Institute Brings Hope To Rare Disease Patients

Electronic Health Reporter

By Romina Ortiz, COO and vice president of patient advocacy, Rare Genomics Institute. This article is copyrighted strictly for Electronic Health Reporter. Illegal copying is prohibited. Getting a diagnosis for a rare disease is a long and often painful journey that can take an average of five years1 and hundreds of doctor visits.

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Creating A Thriving Patient-Centric Data Economy

HIT Consultant

Patient data will be a sustainable resource that continually generates patient-benefitting research insights. Patient advocacy and non-profit health organizations will be the “credit unions” — responsible fiduciaries who connect patients, researchers, hospitals and other institutions.