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Hearing Patients and Their Caregivers First Hand at the RARE Patient Advocacy Summit

Healthcare IT Today

Kind of on a whim I decided to head to San Diego (a great place for whimsical travel) for the RARE Patient Advocacy Summit by Global Genes. One other cool thing was that many of those in attendance had literally written the book on rare disease. Ok, Barby has like 9 books: [link]. HITsm pic.twitter.com/EqdQvPhisf.

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Another Legislative Attempt to Revive Gene Patenting

Bill of Health

One hundred sixty civil rights, medical, scientific, patient advocacy, and women’s health organizations opposed the Coons-Tillis bill, arguing that if it were enacted, “Patients will again be at risk of lacking access to information about their genes, about their very selves. Myriad and Gene Patenting.

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Can a Food-As-Medicine App Extend Chronic Health Management at the Grocery Store?

Health Populi

Sidebar: Dr. Lustig’s book, Metabolical, is must-reading if you are keen to better understand the interrelationship between nutrition, metabolism, inflammation, and immunity). The philosophy underneath Foogal is that “Our health is in our hands,” and the best medicine we have is food.

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What’s Causing Fewer Primary Care Visits in the US?

Health Populi

Primary care provides patient advocacy in the health care system to accomplish cost-effective care by coordination of health care services. Primary care promotes effective communication with patients and encourages the role of the patient as a partner in health care. This is one of the pillars for U.S.

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Heart Health at #CES2019 – Food and Tech as Medicine

Health Populi

My friend and colleague Susannah Fox coined the term peer-to-peer healthcare as she observed the phenomenon while leading studies at the Pew Research Group into how patients were using the Internet for self-care. Now, people seek better customer service, enchanting design, streamlined workflows, and more confidence in their medical care.

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Wasted: $1 of Every $4 Spent on Health Care In America

Health Populi

On the demand side — as the patient is becoming a growing force as Payor — will patients-as-consumer-payors articulate their demand to exorcise wasted spending, taking on their mantle as Health Citizens? That’s the Holy Grail and vision in my book, HealthConsuming: From Health Consumer to Health Citizen.

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Creating A Thriving Patient-Centric Data Economy

HIT Consultant

Patient data will be a sustainable resource that continually generates patient-benefitting research insights. Patient advocacy and non-profit health organizations will be the “credit unions” — responsible fiduciaries who connect patients, researchers, hospitals and other institutions.